Not only does the disease have a profound impact on the lives of the women – it also effects overall health and well being, with far fetching repercussions within the economic environment as symptoms can result in long- and short-term absence from work, and at times, result in leaving the workplace all together.

Some of the statistics and facts are overwhelming:

• Endometriosis can end women’s careers
• Women who have surgery for endometriosis are 85%
• Up to one third of women with endometriosis suffer from infertility

People with endometriosis want a quicker diagnosis, and better pain management. Many try changes to their diet or exercise to control their symptoms, but there is very little research on whether this is effective. There is currently no known cure for the disease.

We can change the status quo. ENDO1000 is a UK-wide research project that will collect data and biological samples over a two-year period from 1000 people with endometriosis. The resulting resource will allow much needed research into the development of personalised care for people with the condition. The project, delivered by a team at the Centre for Reproductive Health within the Institute of Regeneration and Repair at Edinburgh University and led by Professor Andrew Horne, has the potential to transform the lives of millions.

With your support, we can make a tangible difference. You can help by donating, becoming an ambassador or sharing your story with us – we need to talk about endometriosis, and we would love you to be part of it. Supporting the research project will have a material difference on the future of those with this disease and could result in pioneering outcomes that change how women live their personal and professional lives.

Professor Andrew Horne, ENDO1000 Co-Director said, “I have had the opportunity to speak with many women over the years with endometriosis, and to hear the detrimental impact it has had on their everyday lives, with little hope or treatment – we now have a window of opportunity to change this through ENDO1000. Let’s talk about endometriosis and support the research together to drive forward a positive impact on the health of women both at home and abroad.”

For more information on ENDO1000 and to start the conversation on endometriosis, visit www.endo1000.com or email: endo1000@ed.ac.uk

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